Wednesday, November 24, 2010

So Thankful

I can't believe that Thanksgiving is tomorrow, how time has flow by?!  I am so very thankful for everything that I have in my life.  Even though I have Lupus, I am relatively healthy and could be so much worse off.  My husband is healthy and most importantly my children are both healthy.  Tomorrow is a day of reflection for everything that is good in our life and I thank God for all that I have been given, both good and bad.  The bad has always made me a stronger person so I am even thankful for that.

Happy Thanksgiving to Everyone.  Enjoy the day.

Monday, November 22, 2010

Shouldn't I be more empathetic?

Everyone thinks that I should be so empathetic because I live with pain on a daily basis and that I completely understand what everyone is going through when they are in pain.  Let me preface by saying that I truly don't mind listening to people complain when they don't feel well or have a legitimate complaint but please don't complain to me about a problem when it just suits you.
I know of a person who is ill, this person has every right to complain, but only complains when it suits her. She can travel for 3 hours in one day when it is something that she wants to do but when it is something that a friend asks her to do; it is just too much for her.  I just despise when people use their illnesses to benefit themselves and to use it as a crutch.  To me it is the same thing as using a handicap plate when you don't need to use it but just want a closer parking space.  I truly hope that I never get to the point where people feel that I use my illness as a crutch and if I do, please tell me.
I feel bad that I am not more empathetic towards this person but when I see her being so selfish it is so hard for me.  I truly do feel bad for her that she does have to live in pain but I just wish she would be honest with herself and everyone else and say that she just doesn't want to do it; don't blame it on an illness because one day it may become reality.

Sunday, November 7, 2010

Living Life in Pain

It can often be so hard to take care of the kids and my husband while living my life in pain.  For the past 2+ months I have been feeling the pain from my Lupus lessen thanks to a wonderful doctor and new medication but I have been dealing with this other pain that has been increasing.  I think it is muscular but today it has finally reached the maximum that I can deal with and I will need to call my primary care doctor tomorrow.  However, it is making it very difficult to take care of the daily routines of the kids.  I hate living in pain but feel like I will be destined to live in pain whether it is due to Lupus pain or something else.

Monday, November 1, 2010

Sorry that I have been gone for so long

I need to apologize to everyone for being out of touch for the past month.  I was in a cast on my hand which made it nearly impossible for me to type so I wasn't able to keep the blog updated but now the cast is off so I hope to keep it updated once again.
My life has been changing pretty rapidly over the past month since I have been unable to type.  My special group of friends and my immediate family raised close to $2000 for the Lupus Alliance of Long Island/Queens Walk Along for Lupus and I am so greatful for everyone for the donation and support.

I also got a part time job which I start today.  It is the ideal mother's hours.  My daughter goes to school full-time but my son goes Monday, Wednesday and Fridays 9:30-2:30 so my job is MWF 10-2.  I'm very excited to have some of my own independency and some of my own money.

Again,  I apologize for being out of touch for so long but promise it will be better now that I am out of my cast.  Hope everyone else is doing well and I look forward to chatting again.