Saturday, August 28, 2010

Full body tremors

Do you want to know what is super annoying?  Having tremors throughout your body.  It started about 2 months ago with just my fingers but now it has moved to my whole hands, arms and face; which I guess isn't my whole body but it is still very annoying.  They are so bad that when I drink from a glass you can hear the glass clanking against my teeth.  My kids are constantly asking me why I am shivering and I have no explaination for them except to lie and say that I am cold.  How do I explain tremors when I don't even know what is causing them?  The one medicine that I am on that could cause it is being reduced so I don't think it is due to that.  They are very annoying though and even though they are not causing me any pain, they are driving me nuts!!!!

Thursday, August 26, 2010

Why must I jinx myself?

I don't consider myself a highly superstitious person but after not having to take a single percocet since Sunday for my migraines I was so excited to share this and told my mom that I thought things were improving for me.  Guess what popped up about 4 hours after talking to my mom?!  That's right a migraine that is a killer so I'm back to taking percocets.  From now on I am going to just keep my mouth shut.  I'll try and write more tomorrow but need to go lie down in a very dark room.

Sunday, August 22, 2010

Why must I always pay for having a good day?

I am so sick and tired of having to "pay" for having a fun day with my family and friends.  Yesterday we ended up taking the boat out to the beach and stayed longer then we planned because we were having so much fun.  I was fully sunscreened and sitting under an umbrella so that the sun would not get to me.  The kids played in the ocean and then in the bay and then in the sand.  We all had a blast sitting around and relaxing and talking.   Our family had planned on only staying for a few hours but then that turned into 6 hours but we were having so much fun and it was such a beautiful day that we decided to eat dinner at the beach and then head home.
Today, though, I am paying for it big time.  This frustrates me so much because I just wish that I could have fun without worrying how I was going to feel the next day.  I don't think I can get anything done around the house today or with the kids because I feel so lousy and I barely did anything.  Sometimes having Lupus really sucks!

Thursday, August 19, 2010

New Addition

I just have to share because I am so excited but we are adding to our family.  We are adopting a Golden Retriever Puppy who will be coming home to us on Labor Day weekend.  Myself and the kids are super excited about it but my husband is stressed about it which makes me feel really bad.  I believe that this is a good idea for our whole family but my husband worries that the stress of another dog will be too much for me to handle.  I did a lot of research and lot of thinking about it and feel it is the best so I guess only time will tell but I am so excited. 

Tuesday, August 17, 2010

My apologies

I just got a message from a friend saying that she was missing reading my blog so I wanted to apologize to everyone for being absent for so long.  It has been a crazy few weeks.  I'm still dealing with migraines that are almost incapacitating but will be seeing a neurologist hopefully soon.  My daughter keeps rubbing my head for me because it feels better when she rubs it and it makes her feel good to think that she is helping me to feel better.  I wish I knew what was going on with them but I guess I will find out soon enough; in the mean time I am taking oxycodone daily to keep them manageable.
My husband and I also took a vacation to St. Lucia.  It was wonderful.  The kids stayed with my parents for the week and it gave us time to reconnect as husband and wife.  Fortunately, I felt stable while we were there so we were truly able to enjoy our time together.  It has made a huge difference in our life and I am so thankful that we were able to do it.