Friday, June 25, 2010

Second Opinions

I've been officially diagnosed with Lupus since 2001 but had been dealing with symptoms since 1996 so getting a diagnosis was a long time coming.  Because my primary care can not explain my chest pain she is beginning to doubt that I may even have Lupus.  My rheumatologist feels I have Lupus but doesn't know how to treat my pain right now.  I saw the pain specialist/chiro who is going to try PT but isn't 100% sure what is going on.  Because of all of this, I have decided to go for a second opinion.  I'm going next Friday to the Hospital for Special Surgery in NYC which is supposed to be the best of the best.  Maybe it will come back that I don't have Lupus but it is something else, maybe it will be Lupus but they will be able to get it under better control or maybe they will just come and tell me the same thing as the doctors out here but at least I will have tried.
I feel like I am back to the beginning in 2000 when I was battling to get some relief.  Sometimes the unknown is worse than the knowing.  At least when you know what you have, you know how to fight it but right now I don't know how to fight it or even what I am fighting.

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