Living with a chronic, invisible disease can be so difficult at times. What I mean by an invisible disease is that there are many diseases where the person looks wonderful even though they feel awful. For example, because of my lupus I have a rash that runs over my cheeks and nose. The redder it is usually means that I am feeling lousy, however, everyone compliments me on what beautiful skin I have. I guess I should look on the bright side and take the compliment and know that at least I look good but sometimes I wish the way I look would match the way that I feel.
Lots of times I feel like no one believes me or that I am a wimp when it comes to my health because I don't look sick. Everyone means well by telling me that I look great but sometimes I wish that I didn't look great so that I would feel "permited" to whine about how lousy I feel.
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Thanks for this. I get this a lot...but your cheeks are always so rosy and healthy looking! It is nice to hear another say that just because I look normal doesn't mean I feel that way.
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